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3009 9823 (968+)

Sultanate of Oman, Wilayat as Seeb, Al Khoudh 6

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    Maather Al Rashdi: a Journey of Challenge and Creativity with Sickle Cell Anemia

    • January 5, 2025
    • Interviews
    Read more

    A Lecture on Marital Counseling in Al Hamra Governorate

    • December 16, 2024
    • News
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    Health Seminar on Hereditary Blood Diseases in Al Khaboura

    • December 16, 2024
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Awareness Sessions

Knowledge is the key to awareness, solidarity, and prevention!

What are Awareness Sessions?

At the Oman Hereditary Blood Disorders Association, we offer awareness sessions aimed at spreading knowledge about hereditary blood disorders and how to manage them. These sessions include explanations of the conditions, guidance on patient care, the importance of premarital screening, and the significance of blood donation to support patients and provide essential treatments.

Who are the sessions for?

Our awareness sessions are designed for a wide range of community and institutional groups, including schools, universities, healthcare centers, companies, and other community organizations. We also welcome individuals who wish to deepen their understanding of these disorders and their impact on society.

Awareness Sessions

Knowledge is the key to awareness, solidarity, and prevention!

What are Awareness Sessions?

At the Oman Hereditary Blood Disorders Association, we offer awareness sessions aimed at spreading knowledge about hereditary blood disorders and how to manage them. These sessions include explanations of the conditions, guidance on patient care, the importance of premarital screening, and the significance of blood donation to support patients and provide essential treatments.

Who are the sessions for?

Our awareness sessions are designed for a wide range of community and institutional groups, including schools, universities, healthcare centers, companies, and other community organizations. We also welcome individuals who wish to deepen their understanding of these disorders and their impact on society.

What are the benefits of Awareness Sessions?

Increasing Awareness and Knowledge

These sessions help raise public understanding of hereditary blood disorders, fostering an informed generation that is aware of the conditions and their impact on individuals and society.

Promoting Prevention and Health Improvement

Participants learn about the importance of premarital screening and blood donation, contributing to disease prevention and overall community health.

Building a Generation Free from Hereditary Disorders

By spreading knowledge and awareness, we help shape a future generation committed to preventing hereditary blood disorders and building a healthier, disease-free community, enhancing public well-being and quality of life.

Available Sessions

  • 90 Minutes

Introduction to Hereditary Blood Diseases: Causes, Symptoms, and Diagnosis

Session Details

Discussion Focus

What are the challenges patients face in early diagnosis? How can community awareness of the symptoms of these diseases be improved? An opportunity for participants to share their personal experiences or stories of people they know regarding diagnosis and treatment.

Introduction to Hereditary Blood Diseases: Causes, Symptoms, and Diagnosis

90 Minutes

Hereditary blood diseases are genetic diseases passed from parents to children. The main causes of these diseases include genetic mutations that lead to problems with blood cells. Symptoms may include persistent fatigue, weakened immunity, excessive bleeding, and sometimes enlarged organs. Diagnosis is made through blood tests and genetic testing.

In this session, we will provide an overview of hereditary blood diseases, such as sickle cell anemia and thalassemia. We will discuss their causes, which include inherited gene mutations, and discuss the symptoms that patients may experience, such as extreme fatigue and anemia. We will also review various diagnostic methods, such as laboratory tests and DNA analysis.

  • 90 Minutes

Pregnancy planning and prevention of hereditary blood diseases: the importance of early screening and genetic preparation

Session Details

Discussion Focus

What obstacles do couples face in undergoing premarital genetic testing? How can the procedures be improved to be more comprehensive and accessible? An opportunity for participants to share their experiences or knowledge of others who have undergone genetic testing before marriage.

Pregnancy planning and prevention of hereditary blood diseases: the importance of early screening and genetic preparation

90 Minutes

Early screening before marriage or pregnancy planning can help prevent hereditary blood diseases. Genetic testing helps determine if a couple carries genes that may cause disease, enabling them to make informed decisions about having children.

We'll discuss how to prepare for pregnancy in ways that minimize the risk of passing on genetic blood diseases to children. We'll explain the importance of premarital genetic testing and medical screenings during pregnancy, and how these preventive measures can help identify the likelihood of developing these diseases.

  • 90 Minutes

The role of the family in supporting patients: psychosocial counseling

Session Details

Discussion Focus

How can the family be an effective source of support? What psychological and social resources are available for families and patients? An opportunity for participants to exchange their thoughts and experiences in providing emotional and social support to patients.

The role of the family in supporting patients: psychosocial counseling

90 Minutes

The family plays a crucial role in supporting patients with hereditary blood diseases. They can provide the psychological and social support patients need to cope with their condition. Psychological counseling helps patients cope with their illness, while social support helps alleviate feelings of isolation and provides practical assistance.

We will discuss the importance of the family's role in providing emotional and social support to patients, and the importance of psychological counseling in improving their quality of life. We will also discuss how to build a supportive environment that helps patients cope with daily challenges and motivates them to continue treatment.

  • 90 Minutes

Patient Life Experiences: Sharing Success Stories and Challenges

Session Details

Discussion Focus

What strategies have helped patients overcome challenges? How can the community be more supportive of patients? An opportunity for participants to share their success stories or personal challenges.

Patient Life Experiences: Sharing Success Stories and Challenges

90 Minutes

Patients with hereditary blood diseases have success stories and challenges worth sharing. These stories help raise awareness and inspire others. Sharing their experiences can help provide psychological and emotional support to others going through similar circumstances.

We will learn the real stories of a group of patients who have successfully overcome the challenges they face. We will listen to their personal experiences and draw inspiration from their strength and determination, contributing to raising awareness and encouraging others to face their difficulties with confidence.

  • 90 Minutes

Raising awareness of the importance of blood donation and its importance for patients with hereditary blood diseases

Session Details

Discussion Focus

What obstacles prevent people from donating blood? How can the culture of blood donation be strengthened in the community? An opportunity for participants to share their views on raising awareness about the importance of blood donation and their personal donation experiences.

Raising awareness of the importance of blood donation and its importance for patients with hereditary blood diseases

90 Minutes

Blood donation is a vital life-saving process for many patients with hereditary blood diseases. These patients require regular blood transfusions to maintain good health. Blood donation is a humanitarian act that can make a significant difference in the lives of these patients.

We'll discuss the role of blood donation in providing necessary treatment for patients, especially those with sickle cell anemia and thalassemia. We'll explain how blood donation can make a significant difference in patients' lives, and provide information on how and where to donate.

  • 90 Minutes

Nutrition and Diet for Hereditary Blood Disorders: Tips for Nutritional Health

Session Details

Discussion Focus

What difficulties do patients face in adhering to a healthy diet? How can these challenges be overcome? An opportunity for participants to share their tips and personal experiences in maintaining a proper diet.

Nutrition and Diet for Hereditary Blood Disorders: Tips for Nutritional Health

90 Minutes

Good nutrition plays a major role in the health of patients with hereditary blood disorders. It's recommended to focus on eating foods rich in iron and vitamins, such as leafy greens, fruits, and red meat. Maintaining a balanced diet helps strengthen the body and face health challenges.

We'll discuss the ideal diet for patients with hereditary blood diseases and how proper nutrition can contribute to improving their health. We'll offer balanced nutritional advice that helps promote overall health and reduce complications associated with the disease.

  • 90 Minutes

Skill development and self-learning for patients: living healthily and managing life effectively

Session Details

Discussion Focus

What essential skills do patients need to effectively manage their lives? How can they develop these skills? An opportunity for participants to share their experiences in developing personal skills and improving their quality of life.

Skill development and self-learning for patients: living healthily and managing life effectively

90 Minutes

It is important for people with hereditary blood disorders to learn how to manage their lives effectively. Developing personal skills such as organization and time management can help them live a healthy and productive life. Continuing education about their condition and how to manage it can enhance their ability to cope.

We will explore strategies for developing patients' personal skills, such as how to manage time and daily tasks effectively. We will also discuss the importance of self-learning and how it can help patients achieve more stable and effective lives.

  • 90 Minutes

Early screening (premarital screening): Building a generation free of hereditary blood diseases

Session Details

Discussion Focus

How can awareness of the importance of premarital screening be enhanced? What policies and procedures can help achieve this? An opportunity for participants to share their ideas on improving premarital screening programs and to discuss their experiences in this field.

Early screening (premarital screening): Building a generation free of hereditary blood diseases

90 Minutes

Early premarital screening is an essential step toward building a generation free of hereditary blood diseases. This screening can reveal whether a couple carries genes that may cause disease, enabling them to make informed decisions about marriage and childbearing, thereby reducing the spread of these diseases.

In this session, we will highlight the importance of premarital screening as a tool for preventing hereditary blood diseases. We will discuss how screening is performed and how it can help build a generation free of these diseases, while also highlighting the health and social benefits of this screening.

Join Us in an Awareness Session

We Allow Community Entities and Institutions to Benefit from our Services by Requesting a Customized Awareness Session to Educate Community Members about Hereditary Blood Disorders and the Importance of Prevention. The Request Includes Organizing a Visit to the Requesting Entity to Provide Tailored and Useful Content that Meets Their Specific Needs.

A request to provide an awareness session.

General Terms and Conditions

The Oman Hereditary Blood Disorders Association aims to support patients with hereditary blood disorders and provide services and assistance to them and their families. Your use of the website and completion of any form constitutes full acceptance of the following terms and conditions.

1. Correct and Accurate Information:

  • The applicant is obligated to provide correct and complete information in all required fields on the forms.
  • The applicant bears legal responsibility for any false or misleading information provided.

2. Personal Data Protection:

  • The association collects personal data only for the purposes specified in the forms.
  • Personal data is used only to provide the requested services and is not shared with any external parties without the express consent of the applicant, except in cases stipulated by law.
  • The applicant has the right to access, correct, or request the deletion of their personal data in accordance with applicable data protection laws.

3. Consent to Terms:

  • Completing and submitting the form is considered the applicant's acceptance of all the mentioned terms and conditions.
  • The association reserves the right to modify the terms and conditions at any time without prior notice. Updates will be published on the website and become effective immediately upon their publication.

4. Donations and Financial Support:

  • All donations are used for the purposes specified in the relevant forms.
  • Donations are non-refundable, except in rare cases where the donor is informed.

5. Obligations and Responsibilities:

  • The association strives to provide services in the best possible way but does not guarantee the achievement of desired results in all cases.
  • The association is not responsible for any damages or losses that may arise from the use of the services provided.

6. Cancellation or Modification of Requests:

  • The association reserves the right to modify or cancel any request if it is found that incorrect information was provided or if it is necessary to do so.
  • The applicant will be notified of any modifications or cancellations through the contact information provided in the form.

7. Inquiries and Complaints:

  • Applicants can contact the association to inquire or submit complaints via email, phone, or the contact form available on the website.
  • The association is committed to handling complaints seriously and promptly in accordance with its internal procedures.

8. Applicable Laws:

  • These terms and conditions are subject to the laws and regulations in force in the Sultanate of Oman.
  • The courts of the Sultanate of Oman shall have exclusive jurisdiction to resolve any disputes that may arise from these terms and conditions.

 

Special Terms and Conditions:

1. Medical Requests (e.g., request for Port-a-Cath injections, securing medication pumps, registration on the joint replacement surgery list, etc.):

  • The applicant must provide a recent medical report that proves the need for the requested service.
  • Requests are subject to review by a specialized medical and social committee before being approved.
  • The association is committed to maintaining the confidentiality of the medical and social information provided and not using it except for the specified purposes.

2. Financial Donations (e.g., donating a sum to buy injections, donating to buy a pump, donating to sponsor patients, etc.):

  • The association is committed to providing periodic reports that show how financial donations are used.
  • An official receipt is issued for every donation received upon request, and the donor can request a copy at any time.
  • The association guarantees the safety and confidentiality of online donation processes using appropriate security protocols.

3. Registration in Programs and Projects (e.g., joining the blood collection project, registering as a member or a team affiliated with the association, etc.):

  • Applicants must meet the criteria specified for each program or project.
  • Participating members or teams are committed to adhering to the association's goals and actively participating in activities and programs.
  • The association provides the necessary training and guidance to members or teams to ensure the achievement of the specified goals.

4. Psychological Support and Guidance Requests (e.g., psychological support sessions for children and adults, family counseling sessions, awareness sessions, etc.):

  • The sessions are provided by qualified specialists in the fields of psychological support and counseling.
  • Sessions are scheduled according to the availability of applicants and specialists, and the association reserves the right to adjust appointments if necessary.
  • The association is committed to maintaining the confidentiality of the information discussed during the sessions and will not share it with any external party.

5. Organizing Visits and Campaigns (e.g., organizing a visit for patients in the hospital, participating in a systematic visit, organizing blood donation campaigns, etc.):

  • The association is responsible for coordinating visit times with the relevant hospitals and health institutions to ensure the smooth running of operations.
  • The association is committed to following safety and security procedures during the organization and execution of visits and campaigns.
  • Participants in visits and campaigns must pre-register to facilitate organization and follow-up.

6. Participation in Competitions and Special Projects (e.g., the "Fighting Iron" competition for thalassemia patients, an opportunity to establish a special project for patients, etc.):

  • Participants must adhere to the specific terms and criteria for each competition or project.
  • Participants retain the intellectual property rights to their ideas and projects, and the association will not use these ideas without explicit consent.
  • The association clearly outlines the terms for distributing prizes and rewards in each competition or project.

7. Blog, Research, and Studies:

  1. Content Provided:
    • The user bears full responsibility for any content published on the blog or submitted as research or a study, including comments, articles, and opinions. The content must be free from any legal violations, such as defamation, incitement, or infringement of intellectual property rights.
    • The association reserves the right to review, modify, or reject any content before publication to ensure its compliance with the association's policies and the laws of the Sultanate of Oman.
    • Users and researchers retain the intellectual property rights to their works but grant the association the right to use and publish these works for educational and awareness purposes while preserving their rights.
  2. Disclaimer:
    • The opinions and comments published on the blog or in research express the views of their authors and do not necessarily reflect the opinion of the association.
    • The association strives to provide accurate and reliable information but is not responsible for any errors or omissions in the published content, whether on the blog or in research and studies. Furthermore, the results contained in research may differ in practical application and are not a substitute for professional medical advice.
  3. Interaction with Content:
    • Constructive discussions on the blog are encouraged, and users must adhere to public etiquette and respect others. Any comment that includes abuse or personal attacks will be deleted.
    • Users can report any violating or inappropriate content through the channels available on the website, and reports will be handled in accordance with established procedures.
  4. Use of Content:
    • The commercial use of the contents of the blog, research, or studies is prohibited without prior permission from the association. The use of content for non-commercial purposes, such as personal or academic education, is permitted, with proper credit to the source.
    • The use of research and studies published on the website for academic and educational purposes is permitted, with adherence to fair use terms and citing the association as the source.
  5. User Rights:
    • Users and researchers can request the modification or deletion of their content or personal data from the website by submitting an official request to the association.

 

Commitment to Terms and Conditions:

By using this website, you acknowledge and agree to fully comply with the terms and conditions mentioned above. We are committed to protecting the rights of all users and ensuring a safe and reliable experience for everyone.

The association reserves the right to modify these terms and conditions at any time. Users are advised to review these terms regularly to stay informed of any changes.

If you have any inquiries or need clarification on any of these terms, or if you wish to submit requests related to your content, please contact us via [Contact Us], and we will be happy to assist you.

Checkboxes *

Individuals Have the Opportunity to Participate in Awareness Sessions We Organize, where They Can Register and Participate in Pre-Planned Sessions. These Sessions Aim to Increase Awareness and Knowledge about Hereditary Blood Disorders and Effective Ways to Prevent Them and Care for those Affected.

Participation in Awareness Session

General Terms and Conditions

The Omani Association for Hereditary Blood Disorders aims to support patients with hereditary blood disorders and provide services and assistance to them and their families. Your use of the website and filling out any form constitutes full acceptance of the following terms and conditions.

1. Accurate and Correct Information:

  • Applicants must provide accurate and complete information in all required fields of the forms.
  • Applicants bear legal responsibility for any false or misleading information provided.

2. Personal Data Protection:

  • The association collects personal data only for the purposes specified in the forms.
  • Personal data is used solely to provide the requested services and is not shared with any third parties without the applicant's explicit consent, except as required by law.
  • Applicants have the right to access, correct, or request deletion of their personal data in accordance with applicable data protection laws.

3. Acceptance of Terms:

  • Filling out and submitting the form constitutes the applicant’s agreement to all stated terms and conditions.
  • The association reserves the right to modify the terms and conditions at any time without prior notice. Updates will be posted on the website and take effect immediately upon publication.

4. Donations and Financial Support:

  • All donations are used for the purposes specified in the relevant forms.
  • Donations are non-refundable except in rare cases where the donor is informed.

5. Obligations and Responsibilities:

  • The association strives to provide services in the best possible way but does not guarantee achieving the desired results in all cases.
  • The association is not responsible for any damages or losses that may result from using the provided services.

6. Cancellation or Modification of Requests:

  • The association reserves the right to modify or cancel any request if it is found that false information was provided or if necessary.
  • Applicants will be notified of any modifications or cancellations via the contact details provided in the form.

7. Inquiries and Complaints:

  • Applicants can contact the association for inquiries or to submit complaints via email, phone, or the contact form available on the website.
  • The association is committed to handling complaints seriously and promptly according to internal procedures.

8. Applicable Laws:

  • These terms and conditions are governed by the laws and regulations in the Sultanate of Oman.
  • The courts of the Sultanate of Oman have exclusive jurisdiction to resolve any disputes arising from these terms and conditions.

Specific Terms and Conditions:

1. Medical Requests (e.g., Port-a-Cath injection requests, drug pump insurance, registration for joint replacement surgeries, etc.):

  • Applicants must provide a recent medical report proving the need for the requested service.
  • Requests are subject to review by a medical and social committee before approval.
  • The association is committed to maintaining the confidentiality of medical and social information provided and using it only for specified purposes.

2. Financial Donations (e.g., donations for injections, pumps, patient sponsorships, etc.):

  • The association is committed to providing periodic reports on how financial donations are used.
  • An official receipt is issued for each donation upon request, and donors can request a copy at any time.
  • The association ensures the security and confidentiality of donations through the website using appropriate security protocols.

3. Registration in Programs and Projects (e.g., joining the blood collection project, registering as a member or affiliated team, etc.):

  • Applicants must meet the criteria specified for each program or project.
  • Members or participating teams must adhere to the association’s objectives and actively participate in activities and programs.
  • The association provides necessary training and guidance to members or teams to ensure achieving the specified goals.

4. Psychological Support and Counseling Requests (e.g., support sessions for children and adults, family counseling, awareness sessions, etc.):

  • Sessions are provided by qualified specialists in psychological support and counseling.
  • Sessions are scheduled according to the availability of applicants and specialists, and the association reserves the right to adjust appointments if necessary.
  • The association is committed to maintaining the confidentiality of information discussed during sessions and does not share it with any external party.

5. Organizing Visits and Campaigns (e.g., hospital visits, systematic visits, blood donation campaigns, etc.):

  • The association coordinates visit schedules with hospitals and relevant health institutions to ensure smooth operations.
  • The association adheres to safety procedures during visits and campaigns.
  • Participants must register in advance to facilitate organization and follow-up.

6. Participation in Competitions and Special Projects (e.g., Iron Fight competition for thalassemia patients, starting special projects for patients, etc.):

  • Participants must comply with the terms and criteria specified for each competition or project.
  • Participants retain intellectual property rights to their ideas and projects; the association does not use them without explicit consent.
  • The association clearly explains the terms for awarding prizes and rewards for each competition or project.

7. Blog, Research, and Studies:

  1. Submitted Content:
    • Users are fully responsible for any content published on the blog or submitted as research or study, including comments, articles, and opinions. Content must not violate laws such as defamation, incitement, or intellectual property infringement.
    • The association reserves the right to review, edit, or reject any content before publication to ensure compliance with association policies and Omani laws.
    • Users and researchers retain intellectual property rights to their work but grant the association the right to use and publish it for educational and awareness purposes while preserving their rights.
  2. Disclaimer:
    • Opinions and comments published on the blog or in research reflect the views of their authors and do not necessarily represent the association’s opinion.
    • The association strives to provide accurate and reliable information but is not responsible for any errors or omissions in the published content, and research results may vary in practical application and are not a substitute for professional medical advice.
  3. Interaction with Content:
    • Constructive discussions on the blog are encouraged, and users must follow proper etiquette and respect others. Any comment containing abuse or personal attacks will be removed.
    • Users can report any inappropriate content through available channels, and reports will be handled according to procedures.
  4. Use of Content:
    • Commercial use of blog content or research/studies is prohibited without prior permission from the association. Non-commercial use for personal or academic purposes is allowed with proper source citation.
    • Research and studies published on the site may be used for academic and educational purposes in compliance with fair use policies, citing the association as the source.
  5. User Rights:
    • Users and researchers may request modification or deletion of their content or personal data from the site by submitting a formal request to the association.

Compliance with Terms and Conditions:

By using this website, you acknowledge and agree to fully comply with the above terms and conditions. We are committed to protecting the rights of all users and ensuring a safe and reliable experience for everyone.

The association reserves the right to modify these terms and conditions at any time. Users are advised to review these terms regularly to stay informed of any changes.

If you have any questions or need clarification on any of these terms, or if you wish to submit requests related to your content, please contact us via [Contact Us], and we will be happy to assist you.

Checkboxes *

Individuals Have the Opportunity to Participate in Presenting Awareness Sessions that We Organize, where They Can Register and Participate in Pre-Planned Sessions. These Sessions Aim to Increase Awareness and Knowledge about Hereditary Blood Disorders and Effective Ways to Prevent Them and Care for those Affected.

Participation as an awareness session presenter

Maximum file size: 104.86MB

General Terms and Conditions

The Omani Association for Hereditary Blood Disorders aims to support patients with hereditary blood disorders and provide services and assistance to them and their families. Your use of the website and filling out any form constitutes full acceptance of the following terms and conditions.

1. Accurate and Correct Information:

  • Applicants must provide accurate and complete information in all required fields of the forms.
  • Applicants bear legal responsibility for any false or misleading information provided.

2. Personal Data Protection:

  • The association collects personal data only for the purposes specified in the forms.
  • Personal data is used solely to provide the requested services and is not shared with any third parties without the applicant's explicit consent, except as required by law.
  • Applicants have the right to access, correct, or request deletion of their personal data in accordance with applicable data protection laws.

3. Acceptance of Terms:

  • Filling out and submitting the form constitutes the applicant’s agreement to all stated terms and conditions.
  • The association reserves the right to modify the terms and conditions at any time without prior notice. Updates will be posted on the website and take effect immediately upon publication.

4. Donations and Financial Support:

  • All donations are used for the purposes specified in the relevant forms.
  • Donations are non-refundable except in rare cases where the donor is informed.

5. Obligations and Responsibilities:

  • The association strives to provide services in the best possible way but does not guarantee achieving the desired results in all cases.
  • The association is not responsible for any damages or losses that may result from using the provided services.

6. Cancellation or Modification of Requests:

  • The association reserves the right to modify or cancel any request if it is found that false information was provided or if necessary.
  • Applicants will be notified of any modifications or cancellations via the contact details provided in the form.

7. Inquiries and Complaints:

  • Applicants can contact the association for inquiries or to submit complaints via email, phone, or the contact form available on the website.
  • The association is committed to handling complaints seriously and promptly according to internal procedures.

8. Applicable Laws:

  • These terms and conditions are governed by the laws and regulations in the Sultanate of Oman.
  • The courts of the Sultanate of Oman have exclusive jurisdiction to resolve any disputes arising from these terms and conditions.

Specific Terms and Conditions:

1. Medical Requests (e.g., Port-a-Cath injection requests, drug pump insurance, registration for joint replacement surgeries, etc.):

  • Applicants must provide a recent medical report proving the need for the requested service.
  • Requests are subject to review by a medical and social committee before approval.
  • The association is committed to maintaining the confidentiality of medical and social information provided and using it only for specified purposes.

2. Financial Donations (e.g., donations for injections, pumps, patient sponsorships, etc.):

  • The association is committed to providing periodic reports on how financial donations are used.
  • An official receipt is issued for each donation upon request, and donors can request a copy at any time.
  • The association ensures the security and confidentiality of donations through the website using appropriate security protocols.

3. Registration in Programs and Projects (e.g., joining the blood collection project, registering as a member or affiliated team, etc.):

  • Applicants must meet the criteria specified for each program or project.
  • Members or participating teams must adhere to the association’s objectives and actively participate in activities and programs.
  • The association provides necessary training and guidance to members or teams to ensure achieving the specified goals.

4. Psychological Support and Counseling Requests (e.g., support sessions for children and adults, family counseling, awareness sessions, etc.):

  • Sessions are provided by qualified specialists in psychological support and counseling.
  • Sessions are scheduled according to the availability of applicants and specialists, and the association reserves the right to adjust appointments if necessary.
  • The association is committed to maintaining the confidentiality of information discussed during sessions and does not share it with any external party.

5. Organizing Visits and Campaigns (e.g., hospital visits, systematic visits, blood donation campaigns, etc.):

  • The association coordinates visit schedules with hospitals and relevant health institutions to ensure smooth operations.
  • The association adheres to safety procedures during visits and campaigns.
  • Participants must register in advance to facilitate organization and follow-up.

6. Participation in Competitions and Special Projects (e.g., Iron Fight competition for thalassemia patients, starting special projects for patients, etc.):

  • Participants must comply with the terms and criteria specified for each competition or project.
  • Participants retain intellectual property rights to their ideas and projects; the association does not use them without explicit consent.
  • The association clearly explains the terms for awarding prizes and rewards for each competition or project.

7. Blog, Research, and Studies:

  1. Submitted Content:
    • Users are fully responsible for any content published on the blog or submitted as research or study, including comments, articles, and opinions. Content must not violate laws such as defamation, incitement, or intellectual property infringement.
    • The association reserves the right to review, edit, or reject any content before publication to ensure compliance with association policies and Omani laws.
    • Users and researchers retain intellectual property rights to their work but grant the association the right to use and publish it for educational and awareness purposes while preserving their rights.
  2. Disclaimer:
    • Opinions and comments published on the blog or in research reflect the views of their authors and do not necessarily represent the association’s opinion.
    • The association strives to provide accurate and reliable information but is not responsible for any errors or omissions in the published content, and research results may vary in practical application and are not a substitute for professional medical advice.
  3. Interaction with Content:
    • Constructive discussions on the blog are encouraged, and users must follow proper etiquette and respect others. Any comment containing abuse or personal attacks will be removed.
    • Users can report any inappropriate content through available channels, and reports will be handled according to procedures.
  4. Use of Content:
    • Commercial use of blog content or research/studies is prohibited without prior permission from the association. Non-commercial use for personal or academic purposes is allowed with proper source citation.
    • Research and studies published on the site may be used for academic and educational purposes in compliance with fair use policies, citing the association as the source.
  5. User Rights:
    • Users and researchers may request modification or deletion of their content or personal data from the site by submitting a formal request to the association.

Compliance with Terms and Conditions:

By using this website, you acknowledge and agree to fully comply with the above terms and conditions. We are committed to protecting the rights of all users and ensuring a safe and reliable experience for everyone.

The association reserves the right to modify these terms and conditions at any time. Users are advised to review these terms regularly to stay informed of any changes.

If you have any questions or need clarification on any of these terms, or if you wish to submit requests related to your content, please contact us via [Contact Us], and we will be happy to assist you.

Checkboxes *

About the Association

The Omani Hereditary Blood Disorders Association is a haven of hope and support for those affected by hereditary blood disorders and their families in the Sultanate of Oman. The association plays an active role in raising awareness, providing health, psychological, and social support, with the aim of building a community that understands and stands in solidarity with those affected by genetic disorders.

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  • info@ohbda.om
  • 98233009
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  • العربية
  • Members Dashboard
  • Services
    • Medical Services
      • Joint Replacement
      • Desferal Devices
      • Port-a-Cath Injections
      • Medical Consultation
    • خدمات اجتماعية
      • Awareness Sessions
      • Patient Visits
      • Blood Donation Campaigns
    • Psychological Services
      • Psychological Support Sessions for Adults
      • Psychological Support Sessions for Children
      • Family Support Sessions
  • Projects
    • Early Screening
    • Patient Sponsorship
    • Empowering Patients
    • Iron Fighting Competition
    • Awareness Bus
  • Home
  • About Us
    • Brochures and Publications
  • Agenda
  • Blog
  • Join Us
  • Contact Us
Instagram X-twitter Youtube Linkedin