General Terms and Conditions

The Oman Hereditary Blood Disorders Association aims to support patients with hereditary blood disorders and provide services and assistance to them and their families. Your use of the website and completion of any form constitutes full acceptance of the following terms and conditions.

1. Correct and Accurate Information:

• The applicant is obligated to provide correct and complete information in all required fields on the forms.
• The applicant bears legal responsibility for any false or misleading information provided.

2. Protection of Personal Data:

• The association collects personal data only for the purposes specified in the forms.
• Personal data is used only to provide the requested services and is not shared with any external parties without the express consent of the applicant, except in cases stipulated by law.
• The applicant has the right to access, correct, or request the deletion of their personal data in accordance with applicable data protection laws.

3. Consent to Terms:

• Completing and submitting the form is considered the applicant's acceptance of all the mentioned terms and conditions.
• The association reserves the right to modify the terms and conditions at any time without prior notice. Updates will be published on the website and become effective immediately upon their publication.

4. Donations and Financial Support:

• All donations are used for the purposes specified in the relevant forms.
• Donations are non-refundable, except in rare cases where the donor is informed.

5. Obligations and Responsibilities:

• The association strives to provide services in the best possible way but does not guarantee the achievement of desired results in all cases.
• The association is not responsible for any damages or losses that may arise from the use of the services provided.

6. Cancellation or Modification of Requests:

• The association reserves the right to modify or cancel any request if it is found that incorrect information was provided or if it is necessary to do so.
• The applicant will be notified of any modifications or cancellations through the contact information provided in the form.

7. Inquiries and Complaints:

• Applicants can contact the association to inquire or submit complaints via email, phone, or the contact form available on the website.
• The association is committed to handling complaints seriously and promptly in accordance with its internal procedures.

8. Applicable Laws:

• These terms and conditions are subject to the laws and regulations in force in the Sultanate of Oman.
• The courts of the Sultanate of Oman shall have exclusive jurisdiction to resolve any disputes that may arise from these terms and conditions.

Special Terms and Conditions:

1. Medical Requests (e.g., request for Port-a-Cath injections, securing medication pumps, registration on the joint replacement surgery list, etc.):

• The applicant must provide a recent medical report that proves the need for the requested service.
• Requests are subject to review by a specialized medical and social committee before being approved.
• The association is committed to maintaining the confidentiality of the medical and social information provided and not using it except for the specified purposes.

2. Financial Donations (e.g., donating a sum to buy injections, donating to buy a pump, donating to sponsor patients, etc.):

• The association is committed to providing periodic reports that show how financial donations are used.
• An official receipt is issued for every donation received upon request, and the donor can request a copy at any time.
• The association guarantees the safety and confidentiality of online donation processes using appropriate security protocols.

3. Registration in Programs and Projects (e.g., joining the blood collection project, registering as a member or a team affiliated with the association, etc.):

• Applicants must meet the criteria specified for each program or project.
• Participating members or teams are committed to adhering to the association's goals and actively participating in activities and programs.
• The association provides the necessary training and guidance to members or teams to ensure the achievement of the specified goals.

4. Psychological Support and Guidance Requests (e.g., psychological support sessions for children and adults, family counseling sessions, awareness sessions, etc.):

• The sessions are provided by qualified specialists in the fields of psychological support and counseling.
• Sessions are scheduled according to the availability of applicants and specialists, and the association reserves the right to adjust appointments if necessary.
• The association is committed to maintaining the confidentiality of the information discussed during the sessions and will not share it with any external party.

5. Organizing Visits and Campaigns (e.g., organizing a visit for patients in the hospital, participating in a systematic visit, organizing blood donation campaigns, etc.):

• The association is responsible for coordinating visit times with the relevant hospitals and health institutions to ensure the smooth running of operations.
• The association is committed to following safety and security procedures during the organization and execution of visits and campaigns.
• Participants in visits and campaigns must pre-register to facilitate organization and follow-up.

6. Participation in Competitions and Special Projects (e.g., the "Fighting Iron" competition for thalassemia patients, an opportunity to establish a special project for patients, etc.):

• Participants must adhere to the specific terms and criteria for each competition or project.
• Participants retain the intellectual property rights to their ideas and projects, and the association will not use these ideas without explicit consent.
• The association clearly outlines the terms for distributing prizes and rewards in each competition or project.

7. Blog, Research, and Studies:

1. Content Provided:
   • The user bears full responsibility for any content published on the blog or submitted as research or a study, including comments, articles, and opinions. The content must be free from any legal violations, such as defamation, incitement, or infringement of intellectual property rights.
   • The association reserves the right to review, modify, or reject any content before publication to ensure its compliance with the association's policies and the laws of the Sultanate of Oman.
   • Users and researchers retain the intellectual property rights to their works but grant the association the right to use and publish these works for educational and awareness purposes while preserving their rights.
2. Disclaimer:
   • The opinions and comments published on the blog or in research express the views of their authors and do not necessarily reflect the opinion of the association.
   • The association strives to provide accurate and reliable information but is not responsible for any errors or omissions in the published content, whether on the blog or in research and studies. Furthermore, the results contained in research may differ in practical application and are not a substitute for professional medical advice.
3. Interaction with Content:
   • Constructive discussions on the blog are encouraged, and users must adhere to public etiquette and respect others. Any comment that includes abuse or personal attacks will be deleted.
   • Users can report any violating or inappropriate content through the channels available on the website, and reports will be handled in accordance with established procedures.
4. Use of Content:
   • The commercial use of the contents of the blog, research, or studies is prohibited without prior permission from the association. The use of content for non-commercial purposes, such as personal or academic education, is permitted, with proper credit to the source.
   • The use of research and studies published on the website for academic and educational purposes is permitted, with adherence to fair use terms and citing the association as the source.
5. Users' Rights:
   • Users and researchers can request the modification or deletion of their content or personal data from the website by submitting an official request to the association.

Commitment to Terms and Conditions:

By using this website, you acknowledge and agree to fully comply with the terms and conditions mentioned above. We are committed to protecting the rights of all users and ensuring a safe and reliable experience for everyone.

The association reserves the right to modify these terms and conditions at any time. Users are advised to review these terms regularly to stay informed of any changes.

If you have any inquiries or need clarification on any of these terms, or if you wish to submit requests related to your content, please contact us via [Contact Us], and we will be happy to assist you.